Once the first hour had gone on and Soph continued to surprise us all Becky made an off the cuff comment that she wanted to run away and leave the hospital.

The consultant came in to us and told us about a place called Rainbows, a childrens hospice in Loughborough were we could go and get better end of life care. As we were in a side room in the hospital, Rainbows would be much nicer.

The consultant was worried Soph may not survive the journey but was happy to try and get us there so that we could be in a more comfortable place.